Williams Syndrome Association Ireland

WSAI Junior Camp – August 2017

We are delighted to announce that we are running a four-day music and activity camp for children with WS aged between 3 and 18 from 1-4 August in Limerick. This project will be run with volunteers who are student teachers, student occupational therapists, a qualified music therapist and college lecturers. Activities will include music, dance, sport, drama, story-telling and art. It will also focus on specific learning skills through the medium of music and fun activities. Parents are welcome to come along to meet other parents at this camp. Please complete application form (available at the link below) and send to fionnuala_tynan@eircom.net before 20 July to secure a place.

Limerick Junior Camp Application Form

Fionnuala Tynan
Deirdre Graham
Kelsey Brannigan


FEWS Photo Competition 2017

This year FEWS is once again running a Williams Syndrome photo competition. If you would like to submit a photo please send your pictures via Facebook messages with your name and story or via e-mail at fewsphoto@gmail.com. Full details on the FEWS Facebook page at this Link


New Study of Children with Autism or WS

Durham University have provided very significant support to WSAI in the last few years and in 2016 organized an Anxiety Workshop for some of our members which was very successful.   They are now looking for families who have a child with Autism or Williams syndrome to contribute to their research by filling in an on-line questionnaire.  Full details at
Durham University Questionnaire March 2017


Clare Burren Marathon Challenge

Best of luck to Kieran Savage who is doing the Clare Burren Marathon Challenge on 27th May 2017 in aid of WSAI.  You can find further information on the challenge at http://www.clareburrenmarathonchallenge.com/.

If anyone would like to support Kieran and WSAI please go this Kieran’s fundraising page at www.justgiving.com/Kieran-Savage1

WSAI Spring Newsletter Published

Please see the Spring edition of the WSAI Newsletter

WSAI Newsletter Spring Issue 1.0 Web


WSAI Newsletter October 2016

Please see the October Issue of the WSAI Newsletter

WSAI Newsletter October Issue    

European Youth Exchange project in Ireland

In 2005, the Williams Syndrome Association in Norway received the first grant to host a European Youth Exchange (an informal learning experience for young people). They held a wonderful week in Tromso which was attended by WS people from many European countries including Ireland. Similar youth exchanges have been held in various European countries since 2005 and members of WSAI have attended many of these projects.

WSAI decided to host this European Youth Exchange this year. We applied for, and have been allocated, a grant from the Erasmus + Youth Exchange programme to run this project. We will have 4 WS people and 2 leaders from each of 11 countries around Europe (including Ireland!) in the University of Limerick from 3rd to 10th July for a fun-packed week of learning.

The name of our project is “FEWS – Our Music, Our Culture” and we have planned a very varied week of activities. These include music workshops, Irish dance workshops, art trail, flora & fauna trail, theatre workshops, introduction to gaelic games, a “Gamelan” workshop, night-time entertainment plus more. There will also be a presentation made by each country group present on the music and culture from their own country so that all may learn from each other.

This Youth Exchange is being funded by the EU Erasmus + programme which is administered by Leargas in Ireland. Léargas was established to support international exchange and collaboration in the youth sector, mainly through the medium of European Commission-funded education and training programmes.

We have also received funding for this project from the Spanish Irish Business Network based in Madrid. They organised a very successful St. Patrick’s Day ball which took place on Friday, 18th March in Madrid. The money raised was split between the Williams Syndrome associations in Spain and Ireland. We are extremely grateful to them for their support.

The Tadhg Fannin Foundation

The Tadhg Ó Fainín Foundation was set up in 2011 by Kariann & Eoin Ó Fainín whose world fell apart the day Tadhg, their son, was taken away from them in a tragic accident. With a little help along the way from friends and family, Eoin and Kariann have setup the ‘Tadhg Ó Fainín Foundation’ in honour of their wonderful son.

This year we are very pleased to announce that the Foundation has agreed to raise funds on behalf of WSAI and we will be informing you about a range of events that the Foundation are running this year. We encourage our members to take part in any of these events and would be very grateful for any support you can provide.

You can obtain more information about the Foundation at their website: tadhgofainin.com

On the 23rd of July there will be a 80′s themed Debs Ball held in the Crowne Plazza Santry.
Tickets €50 each (3 course meal , band & DJ.). Could we fill a table or two??.

26th November Tadhg in your eyes in the Helix Dublin. All entrants (30)
must sell 20 tickets at €25 each and get sponsorship of €300.

Also there is a book “Tadhg To the Rescue !” on sale €10 all proceeds to the WS this year. Its a fabulous childrens book and you wont believe whats on the back page. A top Secret Worries/anxiety folder. Maybe we could ask our members to purchase it. There are 400 copies available at the moment.

If you would like to support these events in any way then contact Debbie Brannigan or Carmel Daly.

WSAI Newsletter Spring 2016

Please see the April 2016 edition of the WSAI Newsletter.

WSAI Newsletter Volume 21 Issue 1 April 2016

Annual Weekend Outing 2016 in Waterford

We are pleased to announce that this year’s Weekend Outing will be Waterford at the end of April.
Please see details below.

Venue The Tower Hotel and Leisure Centre, Waterford www.towerhotelwaterford.com
Date Friday 29th April to Monday 2nd May 2016 (long weekend)

Cost to include 3 nights B/B and 2 dinners
Adults €212.50 per person (where there are 2 adults in a room)
Single adult €295 per person
Children up to age 3 Free
Child (age 3 – 12) €30 ea (B&B only) sharing with an adult

Option for 2 night stay – 29th April to 1st May 2016 – Cost to include 2 nights B/B and 1 dinner
Adults €140 per person (where there are 2 adults in a room)
Single adult €210 per person
Children up to age 3 Free
Child (age 3 – 12) €20 ea (B&B only) sharing with an adult

The annual weekend outing provides a great opportunity for individuals and families of WS people to get together, socialise and swap experiences. We would particularly welcome new members. In the past it has proved to be a great success and a very enjoyable event.