Williams Syndrome Association Ireland

WSAI Newsletter Spring 2018

Please see the Autumn edition of the WSAI Newsletter

WSAI Newsletter Vol 23 Issue 1 Spring 2018

 

Study on Social Interaction with Disability

Please note that our friends at Durham University and undertaking a new on line study of the social interaction of children with disability including Williams Syndrome.  Debbie Riby and her team are looking for parents to fill in an online questionnaire on social interaction in order to develop better intervention methods to support children with disability.  As you may recall this team from Durham previously put on a very valuable workshop for WSAI on managing anxiety in children with WS.   If you can assist with this questionnaire please read the information flyer  which will tell you about the research and provide the link to the on-line questionnaire.

Many Thanks   -  WSAI Committee

 

Music/Activity Camp 2018 Details

The Volunteer Application Form for Music/Activity Camp 2018 is now available on this site. Go to the Music and Williams Syndrome page for details.

WSAI Have New Contact Details

WSAI has today put in place new contact arrangements as follows:

By post WSAI can be reached at:

Williams Syndrome Association of Ireland,
Carmichael House,
North Brunswick Street,
Dublin 7.

Out new phone number is:  087 6190213

We can be reached by email at: info@williamssyndrome.ie

 

WSAI Newsletter Vol 22 Issue 2 Autumn 2017

Please see the Autumn edition of the WSAI Newsletter

WSAI Newsletter Vol 22 Issue 2 Autumn 2017

 

Win Handmade Bouzouki

Macdara Ó Faoláin and is a musical instrument maker from the Co. Waterford Gaeltacht, An Rinn. He hand makes musical instruments, specializing in bouzoukis.  Macdara is very kindly raffling off a beautiful handmade bouzouki in aid of WSAI.

If you would like to take part in this raffle and have the chance of getting hold of such a beautiful object then please see the details below:

WSAI Junior Camp – August 2017

We are delighted to announce that we are running a four-day music and activity camp for children with WS aged between 3 and 18 from 1-4 August in Limerick. This project will be run with volunteers who are student teachers, student occupational therapists, a qualified music therapist and college lecturers. Activities will include music, dance, sport, drama, story-telling and art. It will also focus on specific learning skills through the medium of music and fun activities. Parents are welcome to come along to meet other parents at this camp. Please complete application form (available at the link below) and send to fionnuala_tynan@eircom.net before 20 July to secure a place.

Limerick Junior Camp Application Form

Fionnuala Tynan
Deirdre Graham
Kelsey Brannigan

 

FEWS Photo Competition 2017

This year FEWS is once again running a Williams Syndrome photo competition. If you would like to submit a photo please send your pictures via Facebook messages with your name and story or via e-mail at fewsphoto@gmail.com. Full details on the FEWS Facebook page at this Link

 

New Study of Children with Autism or WS

Durham University have provided very significant support to WSAI in the last few years and in 2016 organized an Anxiety Workshop for some of our members which was very successful.   They are now looking for families who have a child with Autism or Williams syndrome to contribute to their research by filling in an on-line questionnaire.  Full details at
Durham University Questionnaire March 2017

 

Clare Burren Marathon Challenge

Best of luck to Kieran Savage who is doing the Clare Burren Marathon Challenge on 27th May 2017 in aid of WSAI.  You can find further information on the challenge at http://www.clareburrenmarathonchallenge.com/.

If anyone would like to support Kieran and WSAI please go this Kieran’s fundraising page at www.justgiving.com/Kieran-Savage1