Williams Syndrome Association Ireland

WSAI Annual General Meeting 2018

This years Annual General Meeting will take place in Mary Immaculate College Limerick on Saturday the 24th of November at 4pm following the First WSAI Annual Symposium which will also be held in the College beginning at 10.30am.  During this event Dr Fionnuala Tynan will launch her book WISHES (Williams Syndrome Holistic Educational Strategies).  We are indebted to Fionnuala and Mary Immaculate College for hosting WSAI at what should be a very special event.

Please confirm your attendance with WSAI Secretary Debbie Brannigan (deboraghbrannigan@hotmail.com) if you haven’t done so as room bookings and catering will be based on the number of attendees? Please let her know how many of your children will attend also.

 

 

First National Symposium on Williams Syndrome

Mary Immaculate College will host the first national symposium on Williams syndrome (WS) on Saturday 24th November. WS is a rare genetic neurodevelopmental condition that affects 1:7500 people but it is currently underdiagnosed in Ireland. Its rarity means that parents and professionals often struggle to know how best to support the individual. The day, which begins at 10.30 has parallel sessions for parents, professional and individuals with WS. Inputs include how people with WS perceive their condition, supporting positive behavior through Collaborative Proactive Solutions, developing dynamic parent-professional partnerships, harnessing the power of everyday technology for learning and meeting the needs of professionals to meet the needs of individuals with WS. The book WiSHES (Williams Syndrome: Holistic educational strategies) by Dr. Fionnuala Tynan (MIC) will also be launched on the day by Dr. Patsy Daly, head of the Department of Educational Psychology, Inclusive and Special Education. The symposium will be of value to parents, professionals and anyone seeking to support an individual with WS. There is very limited availability for this symposium left. Please email deboraghbrannigan@hotmail.com to secure a place.

Please see the Formal Invitation to the Symposium including the agenda for the day;  2018_WS Symposium

Autumn Edition of the WSAI Newsletter

Please see the Autumn edition of the WSAI Newsletter

WSAI Newsletter Vol 23 Issue 2 Autumn 2018

 

Online Resources for Physical Therapy for WS

Please see a number of on-line resources which deal with physical movement and posture for people with WS.

Skillsforaction.com

Understandingwilliamssyndromeblogspot.com/muscles-and-bones

Understandingwilliamssyndromeblogspot.com/Muscles

Regards,

Debbie Brannigan, Secretary WSAI

WSAI Newsletter Spring 2018

Please see the Autumn edition of the WSAI Newsletter

WSAI Newsletter Vol 23 Issue 1 Spring 2018

 

Study on Social Interaction with Disability

Please note that our friends at Durham University and undertaking a new on line study of the social interaction of children with disability including Williams Syndrome.  Debbie Riby and her team are looking for parents to fill in an online questionnaire on social interaction in order to develop better intervention methods to support children with disability.  As you may recall this team from Durham previously put on a very valuable workshop for WSAI on managing anxiety in children with WS.   If you can assist with this questionnaire please read the information flyer  which will tell you about the research and provide the link to the on-line questionnaire.

Many Thanks   -  WSAI Committee

 

Music/Activity Camp 2018 Details

The Volunteer Application Form for Music/Activity Camp 2018 is now available on this site. Go to the Music and Williams Syndrome page for details.

WSAI Have New Contact Details

WSAI has today put in place new contact arrangements as follows:

By post WSAI can be reached at:

Williams Syndrome Association of Ireland,
Carmichael House,
North Brunswick Street,
Dublin 7.

Out new phone number is:  087 6190213

We can be reached by email at: info@williamssyndrome.ie

 

WSAI Newsletter Vol 22 Issue 2 Autumn 2017

Please see the Autumn edition of the WSAI Newsletter

WSAI Newsletter Vol 22 Issue 2 Autumn 2017

 

Win Handmade Bouzouki

Macdara Ó Faoláin and is a musical instrument maker from the Co. Waterford Gaeltacht, An Rinn. He hand makes musical instruments, specializing in bouzoukis.  Macdara is very kindly raffling off a beautiful handmade bouzouki in aid of WSAI.

If you would like to take part in this raffle and have the chance of getting hold of such a beautiful object then please see the details below: